Media contact: Leah Nash
Walk, Don’t Run To Support Myasthenia Gravis Research
(Orlando, FL – January 2014) – Be part of the solution to help create a world free of Myasthenia Gravis (MG) — a disease many know little about, yet afflicts people we all know — by joining the Orlando Myasthenia Gravis Walk, Sunday, April 27, 2014, at Baldwin Park in Orlando.
The walk begins at Harbor Park at 10 a.m. Registration opens at 9. Leah Nash, Chief Innovator at Trusted Source and Amber McKeon of Origami Owl, both MG patients, are committed to reaching Orlando’s goal of $20,000. Nationally, the Myasthenia Gravis Foundation of America (MGFA) hopes to raise $750,000 in its scheduled walks this year.
The annual MG Walks generate awareness, renew hope, and create a community of support and strength. They enable patients to talk about their illness — many for the first time — and experience an outpouring of support, concern, and a pledge from family, friends, and coworkers to do more.
The prevalence of MG in the United States is estimated to be about 20 in 100,000 and affects people of any age, race or gender. However, MG is probably under diagnosed and the prevalence may be higher. The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups, and can affect muscles that control eye movements, eyelids, chewing, swallowing, coughing and facial expression, as well as the arms and legs. MG also can affect breathing.
With monies raised from the MG Walks, MGFA is committed to finding a cure for MG and closely related disorders, improving treatment options and providing information and support to people with MG through research, education, community programs, and advocacy.
For more information on the Orlando MG Walk, please contact Leah Nash at .